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Quality of Life and Human Difference

Quality of Life and Human Difference

Quality of Life and Human Difference

Genetic Testing, Health Care, and Disability
David Wasserman, University of Maryland, College Park
Jerome Bickenbach, Queen's University, Ontario
Robert Wachbroit, University of Maryland, College Park
May 2005
Available
Paperback
9780521539715

    This study brings together two important literatures together in the one volume. One concerns the role of quality assessments in social policy, especially health policy. The second concerns ethical and social issues raised by prenatal testing for disability. Hitherto, these two literatures have had little contact with each other: few scholars have written about both, or have compared the two domains in a systematic way, while people with disabilities and disability scholars are underrepresented in recent discussion on health policy and quality of assessment. This book turns the perspectives of disability scholars on issues that have largely been the province of health methodology, policy and philosophy, while angling philosophical policy analysis on problems that have largely been the province of disability scholarship. This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and healthcare economics.

    • Brings together two important literatures - one concerns the role of quality assessments in social policy and the second concerns ethical and social issues raised by prenatal testing for disability
    • Turns disability scholars onto health methodology, policy and philosophy issues while angling philosophical policy analysis on problems that have been the province of disability scholarship
    • Will be sought after by bioethicists, philosophers and specialists in disability studies and healthcare economics

    Reviews & endorsements

    "The nine essays bring together ethical concerns relating to the prenatal testing of fetuses for disease and/or disability, and quantitative assessments of quality of life used to measure the cost-effectiveness of efficiency of health care interventions....Highly recommended." -CHOICE, H.J. John, emerita, Trinity College

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    Product details

    May 2005
    Paperback
    9780521539715
    286 pages
    228 × 152 × 23 mm
    0.39kg
    Available

    Table of Contents

    • Contributors
    • Acknowledgements
    • Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit
    • 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit
    • 2. Predicting genetic disability while commodifying health Anita Silvers
    • 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock
    • 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson
    • 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord
    • 6. Preventing the existence of people with disabilities Jeff McMahan
    • 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman
    • 8. The social context of individual choice Tom Shakespeare
    • 9. Disability and health systems assessment Jerome Bickenbach
    • Index.
      Contributors
    • David Wasserman, Jerome Bickenbach, Robert Wachbroit, Anita Silvers, Dan W. Brock, Ron Amundson, Erik Nord, Jeff McMahan, Adrienne Asch, Tom Shakespeare

    • Editors
    • David Wasserman , University of Maryland, College Park
    • Jerome Bickenbach , Queen's University, Ontario
    • Robert Wachbroit , University of Maryland, College Park