The Troubled Helix
The Troubled Helix
$100.00
USDThis wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from human genetics. The availability of increasingly sophisticated information on our genetic make-up presents individuals, and society as a whole, with difficult decisions. Although it is hoped that these advances will ultimately lead the way to the effective treatment and screening for all diseases with a genetic component, at present many individuals are 'condemned' to a life sentence, in the knowledge that they, or their children, will suffer from an incurable genetic disease. This was the first book to attempt to explore and survey these issues from such a variety of perspectives: from personal accounts of individuals coping with the threat of genetic disease, from the viewpoint of clinicians and scientists, and from those concerned with psychosocial, legal and ethical aspects.
- A unique, multi-faceted account of the issues and dilemmas confronting doctors and their patients arising from the new human genetics
- This highly regarded book is now available in an affordable paperback edition
Reviews & endorsements
"The Troubled Helix includes many well-written and comprehensive chapters on the ethical, legal, and social implications (ELSI) of the Human Genome Project...a helpful text on the state of ESLI issues today." Dorothy Nelkin, The Lancet, North American Edition
"...a serious attempt to present both the general reader and specialists in clinical genetics with some insights into the practical problems of the social and psychological aspects of modern human genetics....[I]t contains a lot of new and valuable information about patients' and geneticists' perceptions of genetic disease, together with some insights into the successes and difficulties of research directed at improving how we communicate. Hence it is a very timely addition to the publications on human genetics, and medical genetics in particular." D.J. Weatherall, British Medical Journal
Product details
March 1999Paperback
9780521586122
380 pages
244 × 170 × 20 mm
0.61kg
13 b/w illus. 4 tables
Available
Table of Contents
- Preface. Part I. Personal Stories:
- 1. Daily life and the new genetics: some personal stories 1.2 Huntington's disease S. Wright, J. Madigan, Anon.
- 1.3 Hereditary breast and ovarian cancer J. Zatz, E. Macke, Anon.
- 1.4 Werdnig-Hoffman's syndrome A. Macaulay, H. Hearnshaw
- 1.5 Sickle cell conditions M. France-Dawson, A. Mottoh
- 1.6 Personal experiences of genetic diseases: a clinical geneticists' reaction P. S. Harper
- Part II. Clinical Context:
- 2. The new genetics: a user's guide M. Pembrey
- 3. Decision-making in the context of genetic risk S. Shiloh
- 4. Genetic counselling: some issues of theory and practice S. Michie and T. Marteau
- 5. Evaluating carrier testing: objectives and outcomes T. Marteau and E. Anionwu
- 6. Psychosocial aspects of prenatal screening and diagnosis J. Green and H. Statham
- 7. The genetic testing of children: a clinical perspective A. Clarke and F. Flinter
- 8. Predictive genetic testing in children: paternalism or empiricism? S. Michie
- Part III. Social Context:
- 9. The troubled helix: legal aspects of the new genetics D. Morgan
- 10. Human pedigree and the 'best stock': from eugenics to genetics? J. Durant, A. Hansen and M. Bauer
- 12. Families, kinship and genetics M. Richards
- 13. Ethics of human genome analysis: some virtues and vices J. Wood-Harper and J. Harris
- 14. Genetics and racism H. Bradby
- 15. Predictive genetics: the cultural implications of supplying probable futures C. Davison
- 16. The new genetics: a feminist view M. Stacey
- 17. Afterword M. Richards and T. Marteau
- Index.
